Sunday, November 18, 2007

Putting a Positive Spin on a Positive PET


Here it goes:



  • The size of the tumor and the uptake (cancer) shrank 20% from the last PET. The tumor is 4 cm and the uptake is 5.8.

  • I have pneumonitis but we caught my pneumonitis early b/c it showed up on the PET just as I started to have symptoms.

  • I had already prepared myself that 8 treatments and radiation were possibilities

Thanks to those of you who have let me take my positive attitude hat off for a couple of days. I'm trying to find it....I know it is around here somewhere :) :)


To lighten the mood here is a goofy yet much requested photo of the "blonde" wig!

Saturday, November 3, 2007

The Path Forward

11/15/07 - ARMC for PET/CT
11/20/07 - Dr. Heffner @ Emory for follow up
11/28/07 - Visit to University of NE Medical Center to see Dr. Armitage and Dr. Enke
12/03/07 - Follow up with Dr. Vrana

If the pet is positive, there may be more chemo in the future. Based on the original size of my tumor, radiation is very likely.

Chemo VI

The last trip to club chemo (we hope)! Started off a little worrisome with no blood return. I was fully prepared to go to the hosptial to have my port cleared, but in a final attempt by the AWESOME nurse MARCI...we had blood return. We actually completed chemo VI in one day. My nausea was somewhat controlled by this great drug Dr. Vrana prescribed: Emend. Also, I've had some improvement from Neurotin (it all may be in my head, but whatever works!). Overall, chemo VI...not so bad since we are cautiously optimistic that this may be the last one!

Saturday, October 13, 2007

Getting Wiggy




For those of you haven't had the experience of witnessing my wig, I have posted a picture from the pumpkin patch. I have recently acquired a platinum blond wig that is super cool too, so I guess I can still go incognito? :)


Thanks to Jaimee at Mary Lou's Garden in Watkinsville! She runs a wonderful boutique :)

Chemo V-Come on Blood Return...

Well chemo V was not fun as I expected. We began with the dreaded lack of blood return. I'll spare the details, but basically, if there isn't blood return they can't do the chemo and you have to go to the hospital for a long day of fluids....then come back for chemo.

Since my chemo lasts all day and I barely make it through the whole course if everything goes well, chemo V has turned into a 2 day event. Both days there was trouble with the blood return, but it was ultimately resolved. Hopefully this does not indicate a future problem for the final chemo VI?

The nausea, fatigue, headache, chest pain, the works were there for both days. It is around 5 am and I am basically awake for the first time since noon yesterday.

Walker doesn't understand how I can be getting better and seem to feel so much worse....I guess it is just b/c there isn't much cancer left to fight??!!! Works for me :)

Tumor Size

The tumor size is now less than 1/2 the original size. This is fantastic news as it is based on a PET/CT after only 3 treatments. It is still likely that I will have to have radiation, but not certain.

Saturday, September 22, 2007

Thank You - A Work In Progress (Updated 11/3/07)

There are so many people to thank that this part of the blog will be a work in progress, but I wanted to thank everyone publicly for all that they have done.

First I must thank my family for their love, strength and continued support throughout this whole ordeal! Stephen is a rock, Walker is a constant joy and distraction, my parents and my brother have jumped at each and every call for help, my in-laws have been a great source of support for Stephen as well as for me. My Aunt has been a great mediator and a positive source of energy (and my "keep on movin" painting, fruit, cards, and gifts for Walker...more recently a meal from Honey Baked ham and another toy for Walker)! For Katie and Abby who filled in the babysitting gaps and have become an important part of our lives with their positive influence on Walker (and Nyssa and Sylva)!

Dr. Cassity: There are no words for the gratitude felt for someone who has likely saved your life. Your willingness to go the extra mile and order a chest x-ray either saved my life or at the very least saved me from growing progressively worse. On my first day of cancer you told me that I would run the Peachtree next year...that ray of hope has kept me going...I can see now that it can actually be a reality. The 2008 t-shirt will be for you!

Mickey Montevideo: For agreeing early on to be my cancer recovery manager. Your dedication to emails, phone calls, and committee organization has really made it much easier for communicating with friends and family. Not only am I grateful, but many of my friends and family have expressed their gratitude as well. Thank you also for the many dinners, concert tickets, head shaving, LTN rally and fund raising, and hand holding! More recenlty for yet even more meals, fun distractions, girls night and continued friendship and support!

Paula Butler Kay: For ALWAYS being upbeat!!! For 25 years of steady friendship. For headwear, socks, blankets, babysitting. For multiple dinners (how did I not know that you could cook?). For being the team leader for the LTN walk and the fundraising. Thank you for executing the entire hair plan from the appt. at Siggers to wig shopping to the drive home. More recently for additional meals, babysitting, girls night and just continued calls with upbeat enthusiasm and distractions :)

Dana and Eric Heil: For letting Stephen interrupt your plans and babysitting Walker at one of the most critical nights of our lives. For the movies, dinner and friendship. For participating in LTN and surpassing your fund raising goal!!! More recently for bringing multiple dinner with delicious shrimp and a meal made just for Walker :) Also for your continued frienship and support on a regular basis!!!

Kim Black: For over 20 years of friendship. For multiple dinners. For weekly cards, calls and support. For fundraising for the LTN walk.

Dana and Greg Wilmoth: For friendship, the cool cancer care basket that had so many applicable, personally chosen items for the occasion. Thank you also for coming all the way to Athens to visit and share your new baby news... a bright spot for all of us!

Myles, Libby, Marlee, Ethan, Sean, Michele, Hannah, Emma: For friendship and a wonderful trip to the lake with special people!

Renee Milstead: For friendship, babysitting, LTN donation and attending the Look Good Feel Better event at the Loran Smith Cancer Center.

Mary Ann Hammond: For lasting friendship, agreeing to take on the dinner calendar, for a constant supply of Starbucks coffee :), the softest organic shirt I've ever owned, trucks for Walker, your famous veggie lasagna (I will get that recipe out of you one day), flowers and wine. Also for your continued optimism.

Ruth LeBlanc: For visits with friendship and coming all the way from Kennesaw for LTN and fund raising too!

Helene Schwartz: For attending my first biopsy and taking care of Stephen's meal at ARMC. For friendship, routine cards, holding my hand and Walker's at the visit to the Loran Smith Cancer Center, for a great lunch and visit at Allens Bar and Grill!

Deb Dietzler and Peter Anderson: For friendship, flowers, agreeing to be pet committee chair, homemade bread and that particularly special high protein snack box! More recently for a huge box of goodies including a meal (I have to give Peter some cred for the recipe) though it was well prepared by Deb ;) Special peanut butter, pimento cheese, peanut bars, dangerous chocolate candies, Halloween candle, doggie toy and a wonderful visit with great friends!

Dave Perkins: For being the best mentor and one of the smartest people I have ever known. Thank you for staying in my life and answering my crazy questions. For riding your bike a million miles to benefit the cause and raising over $50k dollars with my headshot pinned to your jersey!

Brooks Arnold: For your friendship, spectacular flowers, LTN donation and willingness to take such good care of my clients at a challenging time for business, continued calls and emails of support.

Sarah Freeman: For your friendship, a wonderful meal and beautiful tray, your LTN donation, cards, calls and emails of support!

Andrea LaFera: For your friendship, you were my first meal and it was a wonderful meal (with less than a week b4 your trip to Italy with a toddler...yikes!) Some of the best meatballs I have ever eaten!!!!

Phyllis Tucker: For hiring me at ExR and therefore bringing Stephen and Walker into my life. For your continued friendship and support over the years. For several wonderful meals and your mother's tasty (but dangerous) cookies, and of course, for the trucks for Walker!

Kathy Bangle: For your friendship, for sharing your faith and giving me strength at such a difficult time, for a fantastic meal and dessert, for your constant prayers for our family!

Callie Waller: For your friendship and your participation in the meal brought by Kathy. More recently....LOOK OUT 5 PTS Deli....you have serious chicken salad competition! Thanks for a repeat that was truly comfort food :) Also for the fun visit catching up.

Amy Flurry: For your friendship, continued calls and emails of support, for a morning of champagne just to celebrate life (and The Dragon at WOW!), and a wonderful Italian meal!

Rhonda Peck, Sandra and Jim Smith: For your friendship and support, for a timely and delicious meal, for the role models of folks who have persevered through difficult times to remain some of the most positive people I have ever known!

Judy Adams: For friendship and an impressively prepared meal with pretty flowers!

DRee Krohn: For friendship, for agreeing to head up the childcare committee, for being patient with my reliance on email rather than phone calls :) More recently for a perfectly prepared steak dinner that Walker was able to enjoy with us, a beautiful salad, asparagus, and mushrooms with red peppers...so DELICIOUS! It was also wonderful to visit and catch up with you :)

Jon Ramsey and Christine Bohlen: For friendship, this blog and continued prayers and support!

John and Chad Siggers: See Hair Today Gone Tomorrow blog entry...

Betty Butler: For prayers and support and very cute head coverings!

Tommie and Terry Kay: For prayers and support, for letting Walker crash the grandkid visit and for encouragement about my choice to stay in Athens by sharing your story about ARMC!

Katie Neal: For prayers and support, for loving and playing with Walker, for spectacular flowers with a cute baby jaguar for Walker!

Sallie Barker: For friendship and beautiful flowers!

Steve Hunt: For friendship and a very important supportive call to Stephen!

Mike and Bob Young: For prayers and support...for a prayer shawl that brought me a great result to the PET/CT!!!!

Susan Sims: For prayers, support, thank you notes and stamps.

Sue Lawrence: For friendship, continuous cards, calls and emails of support, a wonderful and delicious meal and your LTN donation.

Jessica Magnarella: For friendship and a willingness to make a meal that I had to cancel :)

Carolyn Elster: For sharing the cancer bond and for managing to provide a meal for us at a very difficult time for her family.

Pam Parker: For continued friendship and support even in her own difficult times, for cards and emails of support, and for the LTN donation.

Angela McDonough: For a long, special snail mail letter of friendship, for continued emails of support and for her LTN donation.

Don and Phyllis Nelson: For friendship, continued support through cards, calls and emails.

Please see the LTN blog for additional thank you for individual donations.

Joyce Waller for a wonderful meal and a hug that says it all! Thanks for thinking of us.

Caron Lynch for continued love and support, calls and cards!

David Frakt (KCII) for love and support and continued emails that brighten my day with pictures of KCIII, Max :)

Kyla Hastie for continued friendship and support and routine calls. A great camping trip with great friends!